
Remember when I said I needed a distraction to get me through the 16 days until our next court date? Well, I got it. Big time.
I received a video of Tariku from another family traveling to the orphanage to pick up their baby. There were actually three videos of our babe, totaling all of 90 seconds. It was 90 seconds too many. The videos were terrifying. In retrospect, that may be a little melodramatic. But, at the time, they really scared the crap out of me. In the videos, Tariku is practically glued to the floor. His arms barely move out of a fixed position (he rubs his eyes once) and his legs are almost completely motionless (he kicks his left leg ONCE). The only noticeable movement was the repetitive shaking back and forth ("rolling") of his head -- he did this on three separate occasions. It was a deliberate movement - not seizure like.
I went stone cold. I couldn't process what I was seeing. I just kept watching the videos over and over and over. Hoping to see something different. It just looked worse. and worse. and worse. Words, diagnoses, implications were racing through my mind. I was definitely on the verge of all-out panic. Thankfully, I have a very calm, very rational husband. Steve and I went back through every photograph we've seen of Tariku, looking for reassurance that he was "okay." I saw him holding a rattle. Putting his fingers in his mouth. Kicking his legs in the air. Holding a bottle. Reaching for another babe. Smiling. Giggling. Making eye contact. He CAN move his arms. He CAN move his legs. He smiles. He giggles.
The concerns elicited by Tariku's head "rolling" can not be assuaged by looking at still photos. But, I can research with the best of them. So, to the internet I went. Head rolling is apparently a fairly common, benign way for infants to soothe/stimulate themselves. Considering the circumstances of Tariku's first five months of life, I would not be shocked if he had to "head-roll" to either soothe or stimulate. This should have been the end of the story - but I could not get the damn videos out of my mind.
I contacted our agency, AAI, and they were AMAZING. They got in touch with the doctor at the orphanage, and less than 24 hours later, I received his report of Tariku's developmental evaluation. The doctor claims that he is right on track. He rolls over. Holds his head up while on his belly. Transfers objects from hand to hand. Again, this should have been the end of the story. But, I can beat a dead horse better than anyone I've ever met. Comes with being a lawyer. So, I forwarded the videos to the local physician who has been advising us since we received Tariku's referral. She, too, was concerned and asked that a neurological examination be performed, in addition to the developmental evaluation that was just completed. Once again, our agency was on point and we received the doctor's neurological assessment in less than 24 hours. No abnormalities were noted. End of story? Almost. Our agency was willing to request that the orphanage director spend some time with Tariku to see if his behavior triggered any of her alarms. Less than an hour after this request was made, I received an email from the orphanage director. Coincidentally, she had spent time with Tariku yesterday when she gave him our Welcome Bag. She said that he was interactive and responsive, sat well in the Bumbo chair, and reached for the toys she placed in front of him. Her alarms were not going off.
I don't know what to make of the videos. 90 seconds of one day. Perhaps, Tariku fell asleep thirty seconds after they stopped recording, and that is why he was so lethargic. Perhaps, he spent his first three months alone in a room stimulating/ soothing himself by rolling his head. I don't know. I do know that on two consecutive days, I specifically asked the doctor at the orphanage to look for a problem I had flagged. If he was looking for a problem, and there was a BIG problem, I am hoping and praying that he would have noticed it. Or, that the orphanage director would have. I am not there. They are my surrogates - my eyes on the ground. I have to put stock in what they are telling me.
So, I am moving on. Really. He is our son. You don't get to pick your children. Only 8 days until our next court date! Keep your fingers crossed...





